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Support Group

If you are a family member or patient of MCOPS12 and would like to connect with other patient families in an effort to share resources and provide support for one another, please find our Facebook Support Group here:

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Global Genes logo

For additional information and resources regarding rare diseases, please visit Global Genes.

ACFSAF Social Media Facebook
ACFSAF Social Media X
ACFSAF Social Media Instagram
A Cure for Sophia and Friends is currently operating under fiscal sponsorship of Rare Village Foundation, a 501(c)(3) nonprofit organization and your donation is tax-deductible within the guidelines of U.S. law. 100% of collected funds will be used to fund A Cure for Sophia and Friends initiatives.
  • A Cure for Sophia and Friends Facebook Page
  • A Cure for Sophia and Friends X Page
  • A Cure for Sophia and Friends Instagram Page

In Global Partnership

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