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News & Updates

To learn more about our truly exceptional patients, please click on their photo to hear their ultra rare story.

Check out Sophia’s first international video publication with RARE Revolution magazine and their 60 seconds of RARE Campaign! 

Sophia Rose Sutherland

Welcome back to #60SecondsOfRARE campaign. This time we say 'hello' to Sophia who lives with #MCOPS12Syndrome.

Follow RARE Revolution Magazine on social media: - Instagram: @rarerevolutionmagazine - Twitter: @RareRevolutionM - Facebook: @RARERevolutionMagazine - LinkedIn: RARE Revolution Magazine

Be one of our Champions for a Cure ! 

A Cure for Sophia and Friends is currently operating under fiscal sponsorship of Rare Village Foundation, a 501(c)(3) nonprofit organization and your donation is tax-deductible within the guidelines of U.S. law. 100% of collected funds will be used to fund A Cure for Sophia and Friends initiatives.
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In Global Partnership with Cure MCOPS12

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