top of page

How to Support

Your financial support can make a life-changing impact for Sophia and her friends. With your help, we can fund the research and development of a treatment that could potentially cure or substantially improve the cognition and motor function of those with a RARB Mutation/ MCOPS12 syndrome. Every donation counts and could make all the difference in the world for Sophia and other children like her.

Raise Awareness

MCOPS12 is an ultra-rare disease and due to that rarity most people have never heard about this disease and that's where you come in!  Every little bit makes a difference and can help us to give all patients of MCOPS12 a chance at a better life.  If you're looking for more ways to get involved, you can help A Cure for Sophia and Friends’ mission by sharing our story - including our website -, & social media accounts with everyone you know to help raise awareness for our cause and rare orphan diseases.

  • A Cure for Sophia and Friends
  • A Cure for Sophia and Friends
  • A Cure for Sophia and Friends


A Cure for Sophia and Friends is currently operating under fiscal sponsorship of Rare Village Foundation, a 501(c)(3) nonprofit organization and your donation is tax-deductible within the guidelines of U.S. law. 100% of collected funds will be used to fund A Cure for Sophia and Friends initiatives.


Be a part of helping us find treatment options and ultimately a cure for every MCOPS12 Patient Worldwide!

Be one of our Champions for a Cure

bottom of page